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Hello everyone! It's been a while since I've last posted something. I could really use some encouragement, I…

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Hello everyone! It's been a while since I've last posted something. I could really use some encouragement, I feel like I'm really struggling with the recovery at the moment and I don't know what else to do or who else to speak to. It's going to be 1 year since the second surgery this month, and 1 year and 1 year and a half since the first one. I finally began to feel better, do more, after the stress response and having to quit my last job it took almost 6 months to build myself up again. Pushing myself with physio, tracking my steps and increase my walking, building strength back into my l legs because the muscle atrophy from being immobile for so long had really done a significant number on me. I finally made it to averaging 5000-5500 steps a day, where my foot was able to tolerate the load, I wasn't waking up the next day in so much pain, I wasn't limping, I felt more confident walking. Sure, it still wasn't easy, I'd still start feeling discomfort in my feet, slight pain, but I was able to achieve things and simple walking distances that I always used to love to do. I had worked so hard, to get to a point where I could at least tolerate my new job, which is what I wasn't able to do the first time I started working after my second surgery, which resulted in my bones literally about the crack under the pressure (even though it was just going there twice a week). My first day, I only walked 4000 steps, I spent most of it sat down, the bus drops me off and picks me up exactly where I need to go... despite all this, my foot swells up, and hurts, a lot... but not my regular discomfort pain... bone pain... the pain I know all to well means nothing but bad things are happening in my foot. I realised sitting and not moving all day contributed to the swelling as my circulatory system seems to be greatly impacted from the surgeries, so the next day I brought a stool to elevate, some flip flops, iced my foot throughout the day, brought a resistance band to do ankle pumps and even took a short 150-200 step walking break every 30-45 mins. Each day, my foot woke up so sore, bad sore, even though I was still in my acceptable 4000-5000 step limit range, and what I was doing last week easily, has now become more painful and more difficult. Those walks I was doing, my foot hurts much early on, by the time I get home, I'm in so much pain and I don't even want to do anything. It's exhausting, it's been so long, I'm 26 years old and I'm just trying to get on with my life, every day I long to do the things I loved to once do, every day I see the mountains I wish I could climb, spending hours exploring museums, the amount of times I've had to decline social events, or when I rarely do attend, stressing out about my foot and being in so much pain after. One thing that is still so difficult to accept, is that this shouldn't of happened to me, this happened because a surgeon was arrogant and refused to listen to me, who neglected their professional medical duties and committed malpractice against me. And I do not use that word lightly, I've had multiple medical professionals express strongly that this shouldn't have happened, that this was negligence and this surgeon is know for poor practices. My second toe hurts a lot, it had nothing to do with the initial procedure, but now, for the rest of my life it will be altered and has suffered physical damage that can never be reversed. To have to sit with the fact that I had asked the doctor what procedure she was going to do, where she outright declined to answer, not having any idea there was a fibrewire inside my foot, sawing away at my second metatarsal... for months, seeing the bunion revert back to it's original angle, remember expressing over... and OVER how it was coming back, how there was something wrong, and her looking me into my eyes.. coldy and dismissively, saying that she was my doctor, I should listen to her and what she says, and that everything was fine, I should stop worrying so much. It wasn't fine though, and ultimately, I have to continue to live with the consequences... I've also been changed mentally too, this trauma in my life has truly effected my psychological wellbeing, if I talk about my foot to people, sometimes I just start crying, I don't even want to cry, I hate crying but I can't help it, it's so unpleasant, sometimes I even start shaking when I feel so anxious, thinking about my foot. I honestly don't know what else to do at this point, I've tried everything and I am at a loss, I am scheduling an appointment with my podiatrist on Tuesday to try and figure things out. I just really don't want to keep pushing through the pain, which I know I can, because I already did, and end up 2/3 months down the line with a stress response/fracture and have to go back to the boot and crutches again. This job means everything to me, it's at a mental health organisation I was involved with as a teen, the founder is someone I look up to and it's such a wonderful environment, and it's a field I am so incredibly passionate about. It offers me financial stability and freedom and gives me a sense of purpose. I cannot fathom the thought of having to leave, it simply is not possible. I really want to hope and believe things will get better, but, it's hard. I've been through so much already and it doesn't seem like it will get easier anytime soon. I appreciate the space to be able to talk about these things here. Wish me luck and thank you for listening.— feeling sad.

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Community comment#1

First, big hugs!! Are you seeing a mental health professional to help you navigate all this? If you are in the States, I would call an attorney who specializes in malpractice suits against surgeons. Make sure you have your medical records and before and after surgery x-rays. Your surgeon should have told you all the risks to this surgery. Injury happens to the nerves and sometimes that can last a lifetime. Also, if your foot has hardware in it, that can be an issue and might need to come out. Are you icing your foot and elevating it? Are you rubbing your scar with a moisturizer and keeping the scar from sticking to the bone? What type of shoes are you wearing? How severe was your bunion? The more severe a bunion is, the more complications that can happen. Have you been referred to a pain clinic? They can do amazing things!! I was referred for my lumbar region in my back. The spine doctor burned the nerves in that area and now I don't have pain. There is some fancy name for what he did but that is the best way I can explain what he did. You are stronger than you think. You have made it this far. Remember that. I would see another podiatrist and get a second opinion. Unfortunately, we have to advocate for ourselves as no one else is going to. Best to you in getting this taken care of. 🩷

thank you, unfortunately I am not in the United States so a malpractice suite would not be possible, I simply do not have the funds. It's crazy because the second doctor, he took pictures of the procedure and I can literally see the damage done to my second metatarsal. Very surreal. My first surgeon never told me any of the risks, in fact I had asked her questions about it and she just didn't feel like it was important enough to bother. She even did my bunionettes and I don't even remember saying I had issues with them, she just did it because SHE thought she could do whatever she wanted. With the revision surgery they put 14 screws and 2 metal plates into my foot. I've had the hardware looked at a couple of times and it all looks fine, I'm going for my 1 year check up in 2 weeks. I ice and elevate my foot multiple a times a day, everyday for the last year and a half, I have been scar tissue massaging and even getting it dry needled, I have custom made orthotics and 4E new balance 990's, podiatrist recommended. My bunion was pretty severe, and I was also quite young to be undergoing the surgery at 25. I would go to a pain clinic but with the expenses of my physio and podiatrist, I simply cannot afford it, I do however use a tens machine which has helped a bit. The podiatrist I am seeing now is honestly a godsend, he was my second opinion and is the one who advocated for me when something was seriously wrong with my foot, the one good thing is at least the medical team I have now are trying everything to help me get better again. I appreciate your kind words, thank you so very much 🙏🏻

FriendlyReindeer8492 sounds like you have done a lot. I am so sorry you are going through this. I am glad you found another doctor who understands. I sure hope something helps you soon. Big hugs!!

thank you, I saw my podiatrist today and even he said I'm the best kind of patient because I do everything I'm supposed to! I appreciate your support more than you will ever know! 💚

FriendlyReindeer8492 glad you saw him. It is hard when things go wrong. You are most welcome. That is why we are here....to support one another.

Community comment#6

Good lord, you have really been through it! You have a wonderful job and it sounds like they are supportive and of course this group to vent! Don’t bottle it up - let it go! That in itself can be cathartic. Wishing you good luck and good health in your journey!

thank you so much, it's certainly been a journey, one that is far from over, I know I am fortunate to have a good support system which I am so grateful for. I truly appreciate your support and kind words 💚🙏🏻

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