I’m wondering if there are other people on here with hyper mobility.

I’m wondering if there are other people on here with hyper mobility. Not formally diagnosed with EDS but my PCP suspects it. Wait time with geneticist is years. I know treatments can vary greatly for us. If so what have you found helpful for treating plantar fasciitis. My ankles and many other joints are very hyper mobile. I also have extremely flat feet. I have had custom orthotics since I was in middle school (currently in late 40’s), and wear very supportive sneakers with a wide toe box. I have tried shockwave therapy, rolling calves and hips etc... Thank you so much in advance.

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Community replies

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Community comment#1

I have. I don’t see it as a big deal. I taped feet for 3 months and was pain free after that.

Community reply · In reply to an earlier comment#2

ugh. Mine started last July with our very long walks at Disney and still having issues. Anybody else?

Community comment#3

I do have hypermobility and my pain is unbearable at 2000 steps a days. Don’t worry about those that say it’s not a big deal. It can vary in severity vastly.

Community reply · In reply to an earlier comment#4

I completely agree!! I have read we can be more prone to this type of pain. Everybody is different but if it is you trying to get through the pain it is a big deal. Thank you for saying this.Have you found any tips or ideas that have helped you?

Community reply · In reply to an earlier comment#5

not yet but will shout from the rooftops when I do. Low dose radiation has helped a bit (it’s usually at oncology centers that do it for non cancerous conditions like pf). Part of it also ended up being tarsal tunnel syndrome and Baxters nerve entrapment. Doing Hydrodissection for those has helped a bit too. Hypermobility commonly comes with MCAS too which I have to trial some meds for it soon. Which can cause some nerve entrapments which could be it. Red light therapy a bit. Reformer Pilates a bit. Weight lifting with machines so I can strengthen glutes, quads, core etc without standing a bit. Nothing crazy yet to move the needle a lot. Will like to get to 7k steps a day but working on it. Doing shockwave again but a different type. Stretching does nothing for me since things are already stretched out for example. Let me know if you find something that helps too!

Community reply · In reply to an earlier comment#6

thank you so much for your response. There are a few different therapies/techniques on here I had not heard of. I had to look some up. Thank you for your info. I will certainly pass along if I find something that takes my pain away. Again, thank you!

Community comment#7

I’m hyper mobile! I’ve been struggling with pf for 8 years on and off and it’s gotten bad this last year. I was just talking to a friend about how I feel like they’re related as in like slow healing times. I rolled my ankle last summer and my ankle was swollen for a month and a half.